Troop 842
Grafton, Wisconsin
Corporate Partners

 Thrivent Financial for Lutherans

Kohler

Master Lock

These companies are graciously providing food and drinks, waystations, fund matching, and/or financial support when employees join the Ride for Eli.

About Eli
Eli was born 4-13-2011. Problems detected at birth
were extremely difficult to pinpoint. After months of testing and a biopsy,
the doctors are still confused. Eli was hospitalized twice in seven months
for "failure to thrive". At age seven months, a feeding tube was inserted. He has uncontrolled seizures, even with medication. He cannot suck or swallow properly. His thigh muscles are short and have to be stretched daily. Eli’s body is unable
to maintain control over bodily temperature. As a result he overheats easily
and must be closely watched. Eli is unable to sleep for two or three days at a
time with the exception of a few rare minutes. When he sleeps, he frequently
wakes up suddenly, perhaps from seizures. Eli lacks core strength and needs
padding to hold his body upright and stable. The family needs a special wheel chair and a van with an appropriate lift. The family's out of pocket costs from 4-13-2011 to 12-31/2011 was over $20,000

Eli was born on April 13, 2011. Problems detected at birth were extremely difficult to understand and treat, and doctors have had no success after months of testing and a biopsy. Eli has been in and out of the hospital over the past seven months and recently began feeding through a tube.

  • He has uncontrolled seizures and spasms, even with medication.
  • He cannot suck or swallow properly. He is at high risk of aspirating if he eats through his mouth.
  • Eli has severe motor skills delays; he cannot sit, crawl, or hold up his head for any length of time.  His thigh muscles are too short and have to be manually stretched.
  • Eli’s body is unable to maintain control over bodily temperature. As a result he overheats and overchills easily and must be closely watched.
  • Eli is unable to sleep for two or three days at a time with the exception of a few rare minutes. When he sleeps, he frequently wakes up suddenly, perhaps from seizures.
  • Eli lacks core strength and needs padding to hold his body upright and stable.  He cannot sit in his car seat or stroller beyond a couple of minutes, and he falls out of commercial strollers.  The family cannot afford a wheelchair.

The family needs a special wheelchair and a van with an appropriate lift. His feeding tube formula is a special formulation. The family's out-of-pocket costs from birth through the end of 2011 was over $20,000.
Ride for Eli Length and Locations
  • Two routes with multiple end points to fit your time and cycling skill level
  • Grafton to Mequon (7.5 miles)
  • Grafton to Port Washington (5.6 miles), Belgium (15 miles), Cedar Grove (20.4 miles), or Oostburg (23.8 miles)
  • Both routes begin at St. Paul Lutheran Church and School, 701 Washington Street in Grafton
  • Register now!